Highs and Lows, kinda

Thank you to all of you who sent us your prayers yesterday. Since you're praying for us, I thought it only fitting to update you.

Ava's surgery went well. The surgeon said she had a lot of adhesions in her intestines that he had to remove. She was fine in the recovery room, woke up a few times, but nothing too bad. But when we got back to her room, Ava was really uncomfortable, kept writhing on the bed, crying, whining, etc. Even at one point, sat up in the bed and flung herself over. All of which is not normal after a surgery. We kept telling the nurses that she needed more pain meds, but they kept saying that she's had what they can give her. The charge nurse came in and tried to tell me that this was normal, and I told her that this isn't Ava's first surgery. It's her SEVENTH. I know what the hell is normal for my daughter and what isn't. They finally called the surgeon, and got the okay for extra pain medicine. 

I understand that nurses don't have the power that doctors do. But I also know my daugher, and I'll walk thru fire for her. Which means that I'm not going to stand there and say okay when she's in pain. Tough shit, lady. You're dealing with a momma bear.

So the up her pain meds, and give her a different kind. My father and law and I left for home at 6pm, after hubby and I took the girls out to a mexican restaurant. He said that we needed to get out and clear our heads and it was really nice to do so.

So now I'm sitting here while Ava sleeps in my lap. I'm pretty sure I should just put on a diaper. The only time I put her down, she got really distressed and it just wasn't worth it.

So since I'm asking for your prayers, let me show you what you're praying for.

Happy girl during the day on Thursday.

Friday morning at 5am, after being up all night. Crazy how fast things change.

Still waiting in the ER to get admitted.

After the IV and ng tube were inserted.

Saturday morning at 5am, before her surgery at 8:30. At this point, I had been awake for 48 hours with only 5 hours of sleep

Waiting to get wheeled down to surgery.

After they gave her the valium to relax. I know she's only smiling because of the drugs, but it's the first smiles we'd seen in days. Drug induced or not, we were over joyed to see them.

Our awesome friends came to see us and brought us an entire convenience store :) Cherry Coke, Dr Pepper, candy, sea salt and vinegar chips, energy drinks. Everything you need to stay up for days on end.

Me and my father in law with Ava, Sunday morning.









So that's the updates. Waiting on a blood transfusion since her white blood cells and platelets are low. No clue how long we'll be here, a week at best? No idea. Thank GOD our wonderful friends are going to be watching the older girls Tuesday-Friday during the day so Jake and I can be up here together. Then we'll alternate nights. We learned with Ava's RSV that there is no sense in both of us being sleep deprived.

So thank you for your continued prayers for Ava. She just had her seventh surgery. Like, 7. And she just turned one last Wednesday. I know some people who haven't had that many surgeries in their entire lives.

So that's my version of highs and lows today. Everything else that I could bitch or brag about just seems so petty at this point.